The Global Fund is supporting ITPC Global and ITPC West Africa to roll out ITPC's model of Community Observatories throughout 11 countries in West Africa. The initiative is part of a three year progam that started in January 2017. Community monitoring of services is critical in West Africa, where fewer than one in four people living with HIV are getting the HIV treatment they desperately need. This project will establish community monitoring systems that will report regularly at national and regional levels, providing essential data for evidence-informed advocacy to bring about much needed improvements.
On this page you can see an infographic that shows the sorts of questions that communities might ask to monitor the HIV prevention, care and treatment continuum in their countries. You can also examine the community monitoring model developed by ITPC in the image below this. Read more below to find out what other community observatories have been established by ITPC, and read about our Missing the Target Reports which are informed by community-led research.
Community Monitoring Model
The concept of Community Treatment Observatories was pioneered by ITPC. We have been monitoring quality and accessibility of HIV treatment and services in different countries from a community perspective through the Missing the Target Reports series. This process has been successful in building the capacities of treatment activists worldwide in data collection and analysis to guide their advocacy efforts.
ITPC's Original Community Observatories
ITPC established community treatment observatories to systematically collect and analyze qualitative and quantitative data to be used for targeted advocacy on access to treatment. With the support of Deutsche Gesellschaft für Internationale Zusammenarbeit (GIZ), these observatories were formalized in East Africa, West Africa, Central Africa and Latin America: ITPC East Africa is focusing on Country Coordinating Mechanism (CCM) management and transparency issues in the use of Global Fund resources in Kenya, Uganda and Tanzania; ITPC West Africa’s community treatment observatories are collecting data on the state of treatment, with a particular emphasis on stock outs, from a community perspective in Côte d’Ivoire, The Gambia, and Sierra Leone and using it in advocacy at regional, national and local levels; ITPC Central Africa is working with key populations in Central African Republic, Democratic Republic of Congo and Cameroon to ensure more meaningful involvement of key populations in CCMs in order to share best practices and secure resources for the right programs; and ITPC Latin America is supporting community monitoring of the use of Global Fund resources in Guatemala and Nicaragua in order to predict and prevent drug and diagnostic stock outs.
Missing the Target Reports
ITPC contributes a unique perspective to global health advocacy through its Missing the Target (MTT) report series. The MTT reports, along with related advocacy and capacity-building activities, aim to support civil society advocates to monitor the delivery of HIV services in their countries. These advocates hold national governments and global agencies accountable to their commitments to ensure service access for all in need.
The Missing the Target model is unique in empowering communities affected by HIV to understand research methodology and undertake community-led research. Rather than waiting to get the attention of outside researchers or development institutions, the MTT model puts the power in the hands of affected communities to document their issues. As a result, critical gaps in the HIV response are exposed earlier and people empowered to advocate for relevant solutions.
Here are some of our previous Missing the Target Reports: