We have four main areas of work, 1) Treatment Education and Research, 2) Health Financing and Accountability, 3) Intellectual Property Rights / Access to Essential Medicines and 4) Bulding Activism. You can read more about our work on this page, and you can click on the links for more detail.
Our eight regional networks, together with the AIDS and Rights Alliance of Southern Africa, carried out community-led monitoring and research on the status of the implementation of the WHO 2013 HIV treatment guidelines in 16 countries. The findings were published in the July 2014 report: Local Policy, Global Disconnects: A Look into the Implementation of the WHO HIV Treatment Guidelines. ITPC is one of five global partners of the Dutch-funded Bridging the Gaps program to promote the health and rights for key populations (LGBTI people, people who use drugs and sex workers). Under this initiative, ITPC produced the Advocacy for Community Treatment Toolkit with modules on under-standing HIV treatment; intellectual property rights; human rights; health and HIV financing; and community advocacy. Find out more.
ITPC West Africa’s community treatment observatories are collecting qualitative and quantitative data on access to prevention of mother-to-child treatment services in Côte d’Ivoire, The Gambia, and Sierra Leone and using it in advocacy at national and local levels. Community-led research in the Caribbean aims to document and quantify the out-of-pocket expenses incurred by people living with HIV in their efforts to access and remain on treatment (transportation costs, child care, etc.). The findings will represent a significant community contribution to current exercises underway by UNAIDS and Caribbean governments to develop budgets and systems to ensure sustainable ART programs after donors such as the Global Fund and PEPFAR exit the region. Find out more.
ITPC has spearheaded a consortium to promote community engagement in legislative advocacy and strategic litigation to challenge intellectual property-related barriers to access to treatment in middle-income countries. Work is underway with strategic partner organizations in Argentina, Brazil, Ukraine, and Thailand and is supported by the Initiative on Medicines Access and Knowledge (I-MAK), a global NGO with experience in litigating cases challenging patent protections and other intellectual property-related barriers to access to medicines. ITPC Russia and Ukraine, ITPC South Asia, and ITPC MENA have joined regional coalitions to oppose patents on the important Hepatitis C drug Sofosbuvir. For example, ITPC-driven advocacy and community mobilization contributed to the decision by the Indian patent office to oppose a pending patent application. Find out more.
The progress we have seen in access to treatment and improvements in quality HIV services are based on communities self-organizing and demanding their right to health. Members of ITPC play an important role engaging their peers to request effective treatment at the clinic level, advocate for equitable and uninterrupted access to medicines at national level, and form broader coalitions of affected people to carry those demands to regional and global policy structures. Advocacy by individual patients within the health system or by pressure groups at local and national level has always been, and will remain, an integral part of service delivery. Find out more.