Citizen Science moves from models of ‘data extraction’ to ‘data democracy’, by combining community-led monitoring, operational research, and a novel methodology we’ve called Life Mapping, which uses collaborative and participatory visual media tools.

We’ve provided participants with mobile phones, data and training, enabling them to document their experiences and share their perspectives before and during the COVID-19 pandemic, including access to HIV and TB testing, prevention, and treatment services – and their expectations for the future.

Outcomes of the project reflect the experiences of project participants, their advocacy pathways and priorities and real-world changes, such as improved oversight of healthcare, greater gender and sexuality empowerment, and greater familial and social support.