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  • Strong Participation of ITPC and Allies in the Brasilia Consultation on Access to Medicines in the Middle Income Countries

    By 2020, most of people living with HIV will be living in the middle-income countries (MICs), where inequality in access is still high. HIV treatment coverage rates observed in regions like Eastern Europe and Central Asia (EECA) and Middle‐East and North Africa (MENA) and other MICs remain among the lowest in the world. Currently, middle income countries are paying high prices for medicines, particularly the newer medicines such as antiretrovirals used for second‐line and third‐line treatment as well as treatment of HIV related co-morbidities such as hepatitis C.
    Several countries were represented by official delegates and shared their experiences and challenges to ensure access to medicines. Most of these countries are facing concentrated epidemics, which raises a lot of concerns in terms of accessing key populations. And it also represents challenges in terms of market size, since those groups are often marginalized in many contexts and, therefore, are not considered by the public health policies. Because of their income status, these countries are left from access initiatives by international institutions and pharmaceutical companies aiming to increase access to treatment as well as a diminution of aid by global donors. Trade and intellectual property barriers constitute and additional challenge as most of these countries are members of the World trade organization (WTO) and many have been engaged in free trade agreements with very strict intellectual property provisions that reduce drastically generic competition.
    Civil society participation to the consultation was very strong although the number of organizations involved initially was quite low (4 only). ITPC succeeded to mobilize its partner organizations and secure resources to allow key activists at the front of advocacy for access to medicines in their respective countries to attend. Civil society efforts coordinated by ITPC after several weeks of online discussion and teleconferences helped to enrich the conversation on different topics such as markets and prices, intellectual property rights, regulatory issues, voluntary licensing, South-South collaboration and research & development.
    Several recommendations pushed by civil society have been successfully adopted by the participants such as developing cooperation mechanisms, e.g. strengthen patentability criteria and bring MICs together to discuss patent law reform to improve access and adopting TRIPS flexibility (compulsory licensing and patent opposition) as first-line strategy for MICs instead of voluntary mechanisms. Participants also agreed on the need of more support and resources for civil society groups working on advocacy for the implementations of TRIPS flexibilities.

     

    ITPC Global

    16 Jan 2014
    Our Impact
  • Anti TB Drug Stock- outs

    Drug stock outs have dominated many discussions that look at barriers to treatment access for communicable infectious diseases. The main reason for concern when stock outs occur is mostly due to the propagation of drug resistance as a result of failing regimens.
    So when the custodian of a taxpaying citizen facing the dangers caused by stock outs commits sins of omission or commission due to laxity, denialism and self-interest, there are bound to be justified reactions from the affected. At the recently concluded 44th International Union Against Tuberculosis and Lung Diseases conference held on the 30th October to the 3rd November in Paris, Treatment Action Group and Global TB activists exposed the inadequacies of governments & their national TB programmes and particularly shamed the Indian government for failing to acknowledge that there are anti TB stock outs in the country. The Indian stock outs are due to a below par supply management and monitoring system that ignores the involvement of civil society and affected communities.
    Following this action https://vimeo.com/78345486 also reported in key local media outlets in India http://m.timesofindia.com/india/Indians-booed-at-global-meet-for-genocide-of-TB-patients/articleshow/25148964.cms, it is hoped that the momentum to pressure the Indian government (and for that matter other governments that have broken/absent/suboptimal supply management and monitoring systems) will be maintained by local activists who have over the years demanded for an end to HIV & TB medicine stock outs. Global effort from comrades all over the world will continue providing support to fellow activist demanding for an end to HIV & TB stock outs.
    Suffice it to say that humanity will never achieve any Zero targets to HIV and TB if there is no commitment by governments to its citizenry in the spirit of partnership to end stock outs caused by broken or failing supply management and monitoring systems. Denialism needs to end and so does dictatorship, corruption, non-inclusion policies and practice and above all governments need to give meaning to their rhetoric to include civil society in their national responses to HIV and TB.
    Bactrin Killingo
    Senior Knowledge Officer
    ITPC

    ITPC Global

    8 Nov 2013
    Our Impact
  • Silence equals Death

    Silence equals Death

    By Rajiv Kafle

    As I proudly sported my ‘Silencio = Mujerte’ t-shirt that morning and was heading towards the conference shuttle that would take me to the Walter E Washington convention center an elderly lady probably in her sixties greeted me warmly and said “I get re-energized and my blood starts to boil every time I see that silence equals death sign you know”. Even before I could ask her about her connections with those three words on my t-shirt from the Mexico AIDS conference 4 years back she added “AIDS activism in the eighties brought us all together and we were angry like hell with our government.” As she romanticize her good old days I just sat their and listened to her with a smile on my face as if to say to her that I am also a part of that great legacy just because I am wearing the t-shirts now.

    I am from Nepal one of the many poorly run country in the world and even in my country there are no waiting lists when it comes to access to life saving ARV treatment for people living with HIV. When I came here in the United States to learn that half of the people who need treatment do not have access to these life saving drugs it just didn’t feel right specially because one third of resources that goes in keeping people on treatment in my country comes from US taxpayers. I kept thinking that either the US citizens are too generous and kind or the system here is screwed.  I have no doubt that American people are kind and generous but there still remained enough room in my mind to argue that the system is screwed and the silence is killing people.

    It’s been almost a month that I am in the US now and there has not been a day that health care is not on the top of the political agenda since I have been here. I don’t know what incorporates the Romney/Ryan health care plan nor I understand the intricacies of the Affordable Care Act but I am simply trying to figure out as to why there is still waiting lists for those needing life saving treatment in this country and moreover why those on the waiting lists are silent.

    I am now in New Mexico which is one of the few states which has no waiting lists for people who need treatment and that’s a pretty good news to hear for me coming from Nepal you know. But guess what an old friend of mine who I am visiting here recently was prescribed with (a pretty common diarrhea medicine in my part of the world called) ‘metronidazole’. As I looked into her prescription slip from the doctor it read in rather bold letters that she had saved 25$ because of her insurance in getting those 30 pills for just 10 bucks. I laughed my heart out reading those lines and she asked me what the reason was for this untimely burst. I said ‘are you kiddin me’ as I am catching up with few common phrases here and there – showing her the slip.  She asked me what would that cost me in Nepal. “Maybe 60 cents or most of the times nothing because it’s distributed for free under various schemes’ was my answer.

    If I were an American voter I’d ask why I am paying more than a dollar for a 2 cent worth pill and why half of the people in one of the richest nation on earth are deprived of life saving medicines. I would certainly not just remain silent and listen to these endless debates as to whose healthcare plan is better.

    I personally think that both are crap if these plans would not change anything and people living in one of the richest nation on earth are still deprived of basic healthcare and most ironically a handful of people are making a fortune out of this.

    These are decisive times and those of us who pride ourselves in wearing the ‘Silence equals death’ t-shirts should step up our efforts in making our voices heard as we did in the past and more recently during the DC AIDS conference.

    And as the lady on the bus reminded me of how powerful these three words are I wanted to share my story to my friends in US who have inspired me time and again to not to remain silent.

    ******

    I dedicate this story to my friend Steve Garret who laid the foundation of an outstanding healthcare services for people living with HIV in the state of New Mexico where there is not a single person in the waiting list for access to HIV and HCV treatment.

    ITPC Global

    12 Sep 2013
    Commentaries
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