Optimal Treatment is Not a Dream!

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ITPC at AIDS Conference 2016, Durban

ITPC had one clear message for delegates attending the AIDS conference 2016 in Durban, “Optimal Treatment is not a dream!” ITPC led, co-hosted and participated in sessions to keep this message front and center. On every day of the conference, ITPC had a role hosting or presenting at Satellite Sessions, Skills Building Workshops, leading and supporting protest actions, and leading the Treatment Networking Zone. Some of our activities were in the official conference program, and many were not! Not on the program was an ITPC-led direct action on Gilead’s booth to protest at the high price of Sufosbuvir. ITPC also co-hosted and participated in side sessions with World Health Organization (WHO), Médecins Sans Frontières (MSF) and others.
We are proud to see treatment activists featured so prominently in the IAC AIDS 2016 conference video. See ITPC, Be healthy – Know Your Viral Load, Make Medicines Affordable, and the Treatment Networking Zone highlighted here!

Treat People Right!

Bactrin Killingo - Advocacy TacticsThe soundbites most shared on social media from ITPC came from our technical leads, Bactrin Killingo and Othoman Mellouk. Bactrin Killingo, ITPC’s Treatment Education Lead, said simply “I don’t have a PowerPoint. This is my message: Treat People Right!” in his contribution to a session hosted by UNITAID and MSF entitled “Advocacy Tactics: High Level Meetings, Sustainable Development Goals, and Grassroots Activism”.
Othoman Mellouk, ITPC’s Intellectual Property and Access to Medicines Lead, adapted a famous proverb with his statement, “Voluntary licensing is like giving a man a fish so you feed him for a day. Building capacities to use TRIPS flexibilities, is like teaching a man to fish, so you feed him for a lifetime.” Admittedly, you needed to be there, or at least have some grasp of the issues, for that one to work!

ITPC Leads Treatment Networking Zone

Setting-up-TNWZITPC led a partnership of six organizations (STOP AIDS, TAC, RedLAM, MSF, AVAC Alumni Fellows Group) to provide a vibrant timetable of themed activities on the Treatment Network Zone over the five days. Here is Wame Mosime, ITPC’s Global Director of Programs and Advocacy and Trisa Taro, ITPC’s Program Officer, setting up the Networking Zone at the start of the week.

Day one: Treatment Activist Meeting

Bactrin Killingo presenting the viral load treatment cascade
Bactrin Killingo presenting the viral load treatment cascade

On Sunday 17 July, ITPC co-hosted the Activist Strategy Session, and Activist Meeting with partners Treatment Action Campaign, Section 27, Médecins Sans Frontières (MSF) and Health Gap. ITPC’s Intellectual Property and Access to Medicines expert, Othoman Mellouk presented an ITPC-led initiative that aims to Make Medicines Affordable in middle income countries. He highlighted the problems make with World Bank classifications of middle income countries that leaves them exposed to higher prices from drug companies. Bactrin Killingo, ITPC’s Treatment Education expert presented our work educating activists about the need for routine viral load testing.

Day two: ITPC Hosted and Presented at Satellite Sessions

IMG_2005On Monday 18 July, ITPC hosted a Satellite Session, “Optimal Treatment is Not a Dream” with an impressive line up of moderators and speakers including: Wafaa El-Sadr, ITPC’s Executive Director, Solange Baptiste, Andrew Hill, Tahir Amin, Kenly Sikwese, Patricia Ochieng, Loon Gangte, & Carmen Perez Casas. The panel discussion outlined concrete actions to make medicines affordable and scale-up access to treatment monitoring, drawing on the experiences from our community-driven campaigns Make Medicines Affordable Affordable and Be Healthy – Know Your Viral Load.
WHO-satellite sessionOn the same day, ITPC Intellectual Property & Access to Medicines Lead, Othman Mellouk, spoke at the WHO satellite session on financing health and HIV response. This is where we first heard about the man and the fish, and voluntary licensing versus TRIPS flexibilities (see above)!

Day three: HIV & TB Financing for Key Populations

On Tuesday 19 July, ARASA and ITPC hosted a side event to show case our new film featuring key population activists. The activists share glimpses into their personal lives and highlight what they have achieved in securing national financing for interventions aimed at key populations. Leaders of key population activist groups in Botswana, Malawi and Tanzania shared lessons about how to influence the national debate, ensure meaningful participation, and create a dialogue around concrete next steps and approaches that activists should take to ensure the sustainability of financing key population programming. See the film here.
Global Fund networking zone 1Solange speaking at Global Fund Networking zoneITPC Executive Director, Solange Baptiste joined Nana Gleeson from BONELA in a panel discussion at the Global Fund Networking Zone in the Global Village, on how communities can engage with Global Fund regional grants.

Day four: Protest and Skills Building

Gilead-Action-IAC 2016On Wednesday 20 July, ITPC and partners led more than 100 activists in protest against Gilead on the pricing of its drug sofosbuvir. Sofosbuvir, a treatment for hepatitis C, costs $1000 a pill, $84,000 for a 12 week course of treatment, and $100,000 for a combination treatment. Gilead representatives were conveniently absent from the booth at the time. See some footage and more pictures on our facebook page.
IP and Access to Medicines Skills Building workshopAlso on Wednesday, ITPC co-hosted a Skills Building Workshop with I-MAK, “Curbing Unmerited ARV Patents and High Prices in Middle Income Countries.” Drawing on the experience of the facilitators, the workshop provided practical guidelines and examples for setting stricter patentability standards and strategies for filing patent oppositions, including conducting patent searches, monitoring patent applications, prior antiretroviral therapy searches, and drafting of oppositions. The expert line up included: Othoman Mellouk, Tahir Amin, Priti Radhakrishnan, & Kajal Bhardwaj.

Day five: How to Challenge Patents Workshop

IMG_2316Othoman-session-TxNWZ Othoman-session-TxNWZ-2On Thursday 21 July, Othoman Mellouk led a practical do-it-yourself session on how to challenge the monopolistic practices of pharmaceutical companies, at the Treatment Networking Zone. Othoman was supported by Make Medicines Affordable consortium members: All Ukraine Network of People living with HIV, Fundacion Grupo Efectivo Positivo (FGEP), and Associação Brasileira Interdisciplinar de AIDS (ABIA).

Treatment Networking Zone Throughout the Week

The Treatment Networking Zone was a hive of activity throughout the week with sessions organized by all the main partners: STOP AIDS, TAC, RedLAM, MSF, AVAC Alumni Fellows Group. It was the main meeting point for direct actions and marches, and together we ran themed sessions on Youth, 90-90-90, Treatment Education and Intellectual Property and Access to Medicines.
Treatment Networking Zone 2016-4 Treatment Networking Zone 2016-3