ITPC regularly produces publications, advocacy tools, and training materials meant to support activists and civil society organizations in advocating for optimal HIV treatment.
We update this resource library regularly so check back frequently to see what’s new or sign up for our newsletter to be the first to know when new resources are released!
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A community guide for introducing Decision-makers to using CLM Data
The purpose of this guide is to educate, orient, and sensitize different types of decision-makers about how to value and utilize Community-led Monitoring (CLM) data.
Topics: Community monitoring
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CQUIN RECIPIENT OF CARE SATISFACTION TOOLKIT
This toolkit provides a conceptual framework for recipient of care satisfaction (RCS), highlights key decisions related to RCS assessment and improvement, and includes illustrative tools and resources.
Topics: Community monitoring, Differentiated service delivery
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Step-by-Step guide for applying to the UNAIDS Technical Support Mechanism in 2023
Since the TSM application process has recently changed, ITPC Global developed this practical ‘Cheat Sheet’ outlining the specific steps CBOs need to take when applying for UNAIDS Technical support in 2023 and beyond.
Topics: Community monitoring
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Data Management Tools for Community-Led Monitoring (CLM)
Considerations for choosing tools for data collection, analysis, and presentation for Community-Led Monitoring (CLM).
Topics: Community monitoring
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A Guide to Data Analysis Methods in Community-led Monitoring
This guide explains some key concepts and processes involved in analyzing qualitative and quantitative data collected through community-led monitoring (CLM).
Topics: Community monitoring
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Guide to Support Community-Led Monitoring (CLM) Data Use in Decision-Making
This guide supports the use of data generated by community-led monitoring for decision-making and action to improve services, programs, and policies.
Topics: Community monitoring
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Brazil: GOVERNMENT RESOURCE ACCOUNTABILITY DURING THE COVID-19 PANDEMIC
A report from Brazil prepared as Part of a Global and Country-Level Analysis in 18 Countries.
Topics: Community monitoring, COVID-19
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United States: GOVERNMENT RESOURCE ACCOUNTABILITY DURING THE COVID-19 PANDEMIC
A report from the United States prepared as Part of a Global and Country-Level Analysis in 18 Countries.
Topics: Access to medicines, Community monitoring, COVID-19
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Uganda: GOVERNMENT RESOURCE ACCOUNTABILITY DURING THE COVID-19 PANDEMIC
A report from Uganda prepared as Part of a Global and Country-Level Analysis in 18 Countries.
Topics: Community monitoring, COVID-19
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Indonesia: GOVERNMENT RESOURCE ACCOUNTABILITY DURING THE COVID-19 PANDEMIC
A report from Indonesia, prepared as Part of a Global and Country-Level Analysis in 18 Countries.
Topics: Community monitoring, COVID-19
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14 Countries: GOVERNMENT RESOURCE ACCOUNTABILITY DURING THE COVID-19 PANDEMIC
A report from 14 countries, prepared as Part of a Global and Country-Level Analysis in 18 Countries.
Topics: Community monitoring, COVID-19
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Global Analysis: GOVERNMENT RESOURCE ACCOUNTABILITY DURING THE COVID-19 PANDEMIC
This is the 13th “Missing the Target” report produced by ITPC since 2005 and the first MTT report to engage with government resource accountability during the COVID-19 pandemic.
Topics: Community monitoring, COVID-19
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The Good, the Bad, & the Unfinished Business
Addressing the Impact of COVID-19 on HIV and TB Services in Malawi and South Africa Through a Community-Led Monitoring Initiative.
Topics: Community monitoring, COVID-19
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COMMUNITY-LED MONITORING: Best practices for strengthening the model
This paper clarifies the principles behind community-led monitoring of health services, a methodology that uses systematic data collection by communities for evidence-based advocacy to improve accountability, governance and quality of health services.
Topics: Community monitoring
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Community-led Monitoring in Country Proposals for the Global Fund 2023-2025 Funding Cycle (NFM4) Information Brief
This is an information brief on how to create a Community-led Monitoring in Country Proposal for the Global Fund 2023–2025 Funding Cycle (NFM4).
Topics: Community monitoring
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Are the sexual & reproductive health rights of women living with HIV still confined by Covid-19? An analysis of then & now
An update from colleagues across East and Southern Africa about the SRHR issue still facing women living with HIV.
Topics: Community monitoring, COVID-19
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Analysis of ARV Procurement in the Russian Federation in 2021
This publication aims to contribute to the efforts undertaken in the fight against the HIV epidemic in Russia.
Topics: Access to medicines
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Mapping COVID-19 Access Gaps: Results from 14 Countries & Territories
Assessing progress on access to COVID-19 tools across 14 countries: Bangladesh, Democratic Republic of the Congo, Haiti, Jamaica, Liberia, Madagascar, Nepal, Nigeria, Perú, Senegal, Somalia (and de facto state Somaliland), Uganda and Ukraine.
Topics: Access to medicines, COVID-19
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Democratic Republic of Congo Phase II
According to the WHO COVID-19 Tracker, as of June 2022, only 1.91% of the population have been fully vaccinated, meaning that it is one of the countries with the lowest vaccination rates in the world.
Topics: COVID-19
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Nigeria Brief Phase II
According to the WHO COVID-19 Tracker, as of 5 June 2022, a total of 46,391,592 vaccine doses have been administered.
Topics: COVID-19
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Community Engagement Framework for Differentiated Service Delivery
As countries work to achieve HIV epidemic control, the scale-up of high-quality differentiated service delivery (DSD) is a promising approach to improving both the quality and efficiency of HIV services.
Topics: Community monitoring, Differentiated service delivery
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Community Data Matters: A Look Into Community-led Monitoring (AIDS 2022 Plenary)
ITPC Executive Director Solange Baptiste delivered a plenary address on health innovation at #AIDS2022.
Topics: Community monitoring
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Citizen Science Life Maps: The stories behind the data
Outcomes of the project reflect the experiences of project participants, their advocacy pathways and priorities and real-world changes.
Topics: Community monitoring
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Citizen Science: A best-practice model of Community-led Monitoring
Citizen Science is an initiative of ITPC that moves from models of ‘data extraction’ to ‘data democracy’.
Topics: Community monitoring
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What is Community-Led Monitoring?
Community-Led Monitoring (CLM) aims to streamline and standardize treatment access data collected by communities.
Topics: Community monitoring
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Use of modern social media to improve tracking and addressing stock-outs by community-based organisations
As featured at #AIDS2022.
Topics: Access to medicines, Community monitoring
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Generating demand for the test that counts: community-led campaigns to increase routine viral load testing
As featured at #AIDS2022.
Topics: Community monitoring
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Precision in a pandemic
This guide lays out the principles and dimensions of data quality for communities implementing community-led monitoring (CLM).
Topics: Community monitoring, COVID-19
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ITPC Global Annual Review 2021 – Standing Firm
This report highlights the last year of work under our 2021-2023 Strategic Plan. It summarizes our successes, challenges, and operational capacity in 2021, and shows what investing in communities can do.
Topics: Access to medicines, Community monitoring, COVID-19
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ITPC Global audited summary financial statement for the year ending December 31, 2021
For every dollar donated, only 26 cents went towards overheads, making ITPC a high-impact strategic investment.
Topics: Finance reports
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Analysis of Community Treatment Observatory Data for HIV and Hepatitis C Virus Services in India and Indonesia
ITPC provides CLM technical assistance for amfAR’s Treat Asia program
Topics: Community monitoring, COVID-19
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From Insights to Evidence: a guide for translating priorities into qualitative & quantitative measures for community-led monitoring
A guide for translating program and policy priorities into qualitative and quantitative measures for Community-Led Monitoring
Topics: Community monitoring
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Data Gaps in the COVID-19 Response: Findings from a mapping exercise on access to COVID-19 technologies
Here are the findings of an exercise undertaken in November 2021 to populate a mapping tool examining access to COVID-19 vaccines, therapeutics, and diagnostics, as well as certain health systems elements in eight countries (Bangladesh, Liberia, Nepal, Nigeria, Peru, Somalia, Uganda and Ukraine).
Topics: COVID-19
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A guide to HIV for community education & advocacy
Download ITPC’s 2022 Guide to HIV for community education and advocacy
Topics: Treatment education
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Assessing the impact of COVID-19 on people living with HIV
Recipients of care and their communities are a first and central resource to address the epidemics of HIV, TB and COVID-19.
Topics: Community monitoring, COVID-19
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POSTER: Assessing the impacts of Covid-19 on people living with HIV in Uganda
COVID-19 amplified crises across health, human rights and socio-economic domains worsening conditions for PLHIV in Uganda.
Topics: Access to medicines, Community monitoring, COVID-19
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POSTER: The effects of Covid-19 on HIV & TB services in China, Guatemala, India, Nepal & Sierra Leone
COVID-19 devastated some HIV and TB services while galvanizing others.
Topics: Access to medicines, Community monitoring, COVID-19
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How To Implement Community-Led Monitoring: A Community Toolkit
This is a how-to guide developed for community organizations that are planning to implement community-led monitoring (CLM). It provides an overview of CLM and steps for designing, implementing, running and resourcing it.
Topics: Community monitoring
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Unequal, Unprepared and Under Threat: Why Bold Action Against Inequalities Is Needed to End AIDS, Stop COVID-19 and Prepare for Future Pandemics
Titled Unequal, Unprepared and Under Threat: Why Bold Action Against Inequalities Is Needed to End AIDS, Stop COVID-19 and Prepare for...
Topics: Community monitoring, COVID-19
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ITPC Global Annual Review 2020: Communities on the frontline
This report highlights the last year of work under our 2018-2020 Strategic Plan. It summarizes our successes, challenges, and operational capacity in 2020, and shows what investing in communities can do.
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ITPC Global COVID-19 Update (OCTOBER 2021)
In this COVID guide, we look at what the world has learned about the pandemic, transmission, prevention, what COVID-19 does to people, care, treatment and vaccines as of October 2021.
Topics: COVID-19
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Empowering communities to end TB
The Framework is provided to support small and large-scale OneImpact CLM interventions for an integrated and sustained TB response.
Topics: Community monitoring
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Integrating Community-Led Monitoring (CLM) into C19RM Funding Requests
In April 2021, The Global Fund to Fight AIDS, TB and Malaria (The Global Fund) launched the second phase of...
Topics: Community monitoring, COVID-19
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Ending Cryptococcal Meningitis Deaths by 2030: A New Global Initiative
This Strategic Framework outlines the key reasons why a global strategy to address CM deaths is needed and what essential programmatic elements are required to make this a reality.
Topics: Access to medicines
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ITPC Global Strategic Plan 2021 to 2023
A person living with HIV does not just need a package of pills; and a person seeking to prevent HIV does not only need to be offered an HIV test. Instead, each individual should be able to access a health system that responds to them as a whole person.
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Understanding experiences of GBV among women who use drugs (WWUD) and developing prevention and response framework in Coast, Kenya
This study seeks to explore the lived experiences of WWUD and their children in Kenya, in relation to different types of GBV; and structures that perpetuate GBV among this population.
Topics: Community monitoring
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Confined by COVID: impact on women & girls living with HIV, their responses & what is needed next (webinar)
On January 27 2021, ITPC, Salamander Trust and Making Waves held a webinar to talk about the findings of community-led research on the impact of Covid-19 on women and girls living with and affected by HIV, including the impact on sexual and reproductive health and rights. Watch the recording here.
Topics: COVID-19
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Global survey on access to and quality of HIV treatment and care in Vietnam & Indonesia
ITPC’s 2019 Global Survey on Access to and Quality of HIV Treatment and Care, focused on barriers to quality HIV care and treatment services across 14 low- and middle-income countries. This brief summarizes findings of our peer-led research focusing on Vietnam and Indonesia.
Topics: Access to medicines
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Community Guide to WHO HIV Treatment Guidelines
The guide was written for people living with or at risk for HIV, their communities, networks and allies, with the aim to improve access to and quality of HIV prevention, testing, care and treatment services.
Topics: Treatment education
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Confined by COVID: Women, Girls, HIV and SRHR
Women described the new challenges they face in living with HIV during this ‘syndemic’, where the COVID-19 pandemic interacts with existing inequalities.
Topics: COVID-19
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Malaysia and Brazil in the COVID-19 Response
While the two countries are vastly differents, both were ruled by conservative governments when the pandemic began. This report attempts to synthesise learnings from the difference in results and response between both countries.
Topics: Access to medicines, COVID-19
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The Brazilian COVID-19 Response
The objective of this report was to conduct an in-depth examination of key features of the Brazilian response from January through to August 2020.
Topics: Access to medicines, COVID-19
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Impact of COVID-19 on women’s and girls’ sexual and reproductive health and rights in Eastern and Southern Africa
How COVID-19 is affecting the lives of women living with HIV in Kenya, South Sudan, Uganda and Zimbabwe.
Topics: COVID-19
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Global survey on access to and quality of HIV treatment and care – Kyrgyzstan & Ukraine (EECA)
This brief summarizes findings of our peer-led research focusing on two countries in Eastern Europe and Central Asia (EECA) region: Kyrgyzstan and Ukraine.
Topics: Access to medicines, Treatment education
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Global survey on access to and quality of HIV care and treatment – Kenya, Uganda, Zambia & Zimbabwe
This report summarizes findings of our peer-led research focusing on four countries in the East and Southern Africa region: Kenya, Uganda, Zambia and Zimbabwe.
Topics: Access to medicines, Differentiated service delivery, Treatment education
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Global survey on access to and quality of HIV care and treatment – Lebanon & Morocco (MENA)
This report summarizes findings of our peer-led research focusing on two countries in the Middle East and North Africa region: Lebanon and Morocco.
Topics: Access to medicines, Differentiated service delivery, Treatment education
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Leveraging Differentiated ART Delivery Models to Strengthen Family Planning Care
This publication outlines how models of differentiated antiretroviral therapy delivery can be leveraged towards strengthening family planning. This supplement is intended for the use of national and district ART programme managers, implementing partners, community partners and donors.
Topics: Differentiated service delivery
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Impacts of COVID-19 on women living with HIV who use drugs in Nepal
Results from a community-based participatory rapid assessment of the effects of the Covid-19 pandemic on women living with HIV and using drugs in Nepal.
Topics: Access to medicines, Community monitoring, COVID-19
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ITPC Global COVID-19 Update (October 2020)
In this COVID guide, we look at what the world has learned about the pandemic, transmission, prevention, what COVID-19 does to people, care, treatment and vaccines.
Topics: COVID-19
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WHO update of recommendations on first- and second-line ARV regimens
In 2018, WHO published interim guidelines recommending dolutegravir (DTG)-containing regimens as the preferred first- and second-line antiretroviral therapy (ART) regimens...
Topics: Treatment education
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DOING THINGS DIFFERENTLY: Key Findings from Community Treatment Observatories in Malawi, Zambia and Zimbabwe
DOING THINGS DIFFERENTLY: Key Findings from Community Treatment Observatories in Malawi, Zambia and Zimbabwe. In partnership with the AIDS and...
Topics: Community monitoring
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Download ITPC Annual Report 2019: The Future is Community-Led
“Communities are not waiting to be invited to the table or included in your study, they are leading the way.”—Solange...
Topics: Treatment education
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ITPC IAPAC Training Resources
IAPAC-ITPC Community Peer Educator Training to Optimise HIV Prevention, Treatment and Care.
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ITPC Global Annual Audited Summary Financial Statement (2019)
Report on the Audit of the Financial Statements The summary of financial statements contained in the accompanying annual report, which...
Topics: Finance reports
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Women, HIV and their Sexual and Reproductive Health Rights: Are We Meeting WHO Guidelines?
A focus on contraceptive rights, inclusion, access, research in the context of HIV. Women’s ability to decide when and if...
Topics: Access to medicines, Treatment education
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How the Regional Community Treatment Observatory in West Africa improved HIV service delivery, strengthened systems for health, and institutionalized community-led monitoring
We take a look at the community-driven change in West Africa with a focus on: 1. Improved HIV service delivery 2. Strengthened systems for health 3. Institutionalized community-led monitoring
Topics: Community monitoring
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The Impacts of Covid-19 on Health and Human Rights Among Women Living with HIV in Nepal: A Rapid Assessment from a Community-Led, Participatory Study
ITPC worked together with Dristi Nepal to source, analyse and disseminate meticulous, first-hand accounts of the effects of the Covid-19 pandemic on women living with HIV and using drugs in Nepal.
Topics: Community monitoring, COVID-19
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Understanding HIV and its Treatment
By learning more about HIV and ARVs, you are better able to adhere to HIV treatment and protect others. Here's how HIV and its treatment works.
Topics: Treatment education
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ITPC and ICAP at AIDS2020: Differentiated Service Delivery for People with HIV and Non-Communicable Diseases
Solange Baptiste, Executive Director, ITPC Global co-moderated this AIDS2020 Virtual Satellite Session on ”Resilient Chronic Care Systems: Differentiated Service Delivery...
Topics: COVID-19, Differentiated service delivery
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COVID-19 Roundtable Series: Testing, Access and Pricing STILL Matter in a Pandemic
“Without intervention, COVID-19 tests are sold based on politics and profit instead of need.”—Solange Baptiste, Executive Director, ITPC
Topics: COVID-19
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ITPC Community-Led Monitoring research highlighted in UNAIDS guidance on eliminating HIV-related stigma
This UNAIDS publication on eliminating stigma and discrimination references ITPC research on community-led monitoring.
Topics: Community monitoring
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ITPC Virtual Roundtable on Testing, Community Monitoring and Pricing during COVID-19
This webinar creates a space where anyone can ask questions during these times of misinformation and confusion.
Topics: COVID-19
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COVID-19 pandemic: ‘An opportunity of a lifetime’?
All countries must act NOW to make an effective COVID-19 treatment affordable for everyone.
Topics: Access to medicines, COVID-19
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Community Voices on COVID-19
The International Treatment Preparedness Coalition (ITPC) held a virtual roundtable discussion titled Community Voices on COVID-19, to create a safe space...
Topics: COVID-19
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ITPC leads CQUIN Webinar: Perspectives from Recipients of Care During COVID-19
The International Treatment Preparedness Coalition (ITPC) is hosting a virtual discussion on COVID-19 and HIV, in collaboration with ICAP at...
Topics: COVID-19, Differentiated service delivery
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World Health Organisation: Q&A on COVID-19, HIV and antiretrovirals
This Question and Answer document on COVID-19, HIV and antiretrovirals was published by the World Health Organisation Department of Global...
Topics: Access to medicines, COVID-19, Treatment education
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ITPC Community-Led Monitoring Brief
Community-Led Monitoring, for communities, by communities.
Topics: Community monitoring
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Global Survey on Access to and Quality of HIV Treatment and Care
ITPC’s Global Survey on Access to and Quality of HIV Treatment and Care (December 2019) focused on barriers to quality...
Topics: Treatment education
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Community-led monitoring can work anywhere in the world
2-minute trailer. ITPC Community Treatment Observatories are creating systemic impact on healthcare delivery. Watch full length video
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Watching What Matters: ITPC’s Community Treatment Observatories
What started as a low-budget regional project across 11 West Africa countries has become a global pattern for community-led healthcare...
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Regional Community Treatment Observatory Factsheet (October 2019)
Understanding gaps in the HIV Care Continuum in 11 West Africa Countries: Findings from ITPC's Regional Community Treatment Observatory
Topics: Community monitoring
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THE PROBLEM WITH PATENTS
This joint policy brief outlines how patents, and their effect on the cost of HIV treatment, threatens to undermine the HIV response in middle-income countries.
Topics: Access to medicines
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Understanding Gaps in the HIV Treatment Cascade in 11 West African Countries
Significant findings from the Regional Community Treatment Observatory in West Africa
Topics: Community monitoring
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Regional Community Treatment Observatory West Africa Fact Sheet (June 2019)
Understanding gaps in the HIV Care Continuum in 11 West Africa Countries: Findings from ITPC's Regional Community Treatment Observatory
Topics: Community monitoring
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Data For A Difference
Key Findings, Analysis and Advocacy Opportunities from the Regional Community Treatment Observatory in West Africa
Topics: Community monitoring
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What is Differentiated Service Delivery or DSD?
Short animated video explaining what differentiated service delivery (DSD) is and why it is important for HIV treatment access.
Topics: Differentiated service delivery
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What is a CTO?
Short animated video explaining what a community treatment observatory (CTO) is and why it is important for HIV advocacy.
Topics: Community monitoring
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Community and Activists Demand for TLD and RVLT
Article published in Current Opinion on HIV and AIDS on community and activists demand for tenofovir/emtricitabine or lamivudine/dolutegravir and routine...
Topics: Routine viral load testing
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Missing the Target 12 Full Report
Community monitoring research report on Barriers to HIV Treatment Access Among People Who Inject Drugs: A Community Perspective from Pakistan and...
Topics: Community monitoring
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ITPC Annual Review 2018
This report highlights the first year of work under our 2018-2020 Strategic Plan. It summarizes our successes, challenges, and operational...
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Missing the Target 12 Abstract Poster
Barriers to HIV Treatment Among People Who Inject Drugs: A Community Perspective from Kyrgyzstan and Pakistan. Presented at the 2019...
Topics: Community monitoring
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The CTO Model Explained
Implementation Guide for Community Treatment Observatories (CTOs) as a Model for Community-led Monitoring.
Topics: Community monitoring
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The CTO Model Explained
Summary Brief on Community Treatment Observatories (CTOs) as a Model for Community-led Monitoring
Topics: Community monitoring
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Sex Workers’ Experiences of Stock-outs
This briefing paper on the impact of stock-outs of commodities and treatments important to sex workers worldwide.
Topics: Community monitoring
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Youth Activist Chapter on DSD: What Works for Us
This chapter is the newest addition to the Activist Toolkit on Differentiated Service Delivery launched in 2017 and highlights the critical needs and opportunities for reaching adolescents and young people living with HIV.
Topics: Differentiated service delivery
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ITPC Annual Review 2017
This report highlights are accomplishments through 2017, showing what community activism can achieve.
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ITPC Strategic Plan 2018-2020
This plan outlines how we plan to increase access to sustainable treatment of HIV, TB and Hepatitis C through community activism.
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Why We Must Watch What Matters
The baseline study on treatment access barriers from the Regional Community Treatment Observatory in West Africa conducted in June-July 2017.
Topics: Community monitoring
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PrEP Position Statement
This statement outlines seven key PrEP messages from key population networks and PrEP experts.
Topics: PrEP
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PrEP Literature Review
This literature review summarizes the scientific evidence and global recommendations guiding current PrEP policy development and implementation at country level.
Topics: PrEP
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PrEP Meeting Report
This report - from the ITPC-led meeting in May 2017 - summarizes the key discussions on considerations of PrEP implementation.
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Community Perspective on Differentiated Service Delivery
This presentation from the CQUIN Network Meeting in Maputo, Mozambique hosted by ICAP.
Topics: Differentiated service delivery
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Activist Toolkit on DSD: What Works for Me
The toolkit supports communities to engage in and demand recipient-centered models of care.
Topics: Differentiated service delivery
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Regional Community Treatment Observatory in West Africa
Learn all about the Regional Community Treatment Observatory in West Africa in this quick 5-minute video.
Topics: Community monitoring
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Community Demand Creation Model for Routine Viral Load Testing
This article – published in a special supplement of the Journal of the International AIDS Society – outlines ITPC’s Community Demand Creation Model.
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ITPC Annual Report 2016: Investing in Communities
This review highlights the value and results of Investing in Communities over the year.
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ITPC Annual Report 2015: Impact of Community Activism
This report shows the scope and impact of ITPC's work in 2015, and highlight how we represent value for money.
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ITPC Annual Report 2014: AIDS Will Only End When…
This report highlights the work and challenges through 2014.
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WHO Monitoring Report
One year after the release of the updated 2013 WHO Consolidated guidelines, ITPC investigated what the reality was on the ground for people living with HIV.
Topics: Community monitoring
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Missing the Target 11
This report shares experiences of orphans and vulnerable children in Uganda and sex workers in Kenya.
Topics: Community monitoring
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Missing the Target 10
This report focuses on challenges to the scale-up of HIV services as required to implement the Treatment 2.0 framework.
Topics: Community monitoring
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Missing the Target 9
This report report assesses the quality and accessibility of services to prevent vertical transmission of HIV in Cameroon, Côte d’Ivoire, Ethiopia, and Nigeria.
Topics: Community monitoring
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Missing the Target Briefing 8
This report documents early warnings of the global pullback on AIDS commitment and funding.
Topics: Community monitoring
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Missing the Target 7
This report shows the efforts to prevent mother-to-child transmission in 6 countries.
Topics: Community monitoring